CDG Denmark
Les p’tits CDG (France)
Foundation of Glycosylation Canada
Glycokids (Germany)
CDG Italia
Portugese Association for CDG
Spanish Association for CDG
CDG Sweden
CDG Swiss
CDG UK
CDG Care (USA)
Amour Fund (USA)
Cdghub
World CDG
CORD
NORD
Global Genes
NIH- Office of the Rare Disease Research
Orphanet
